Heart Surgery for ChloBug

Since we found out of the possible LongQT Syndrome in 2009 Chloe's life has changed.  She is not supposed to swim, participate in sports, run, ride bike, participate in gym.  Most of the things that kids do she is not supposed to do.  In school while the rest of her class goes to gym, she attends another music class.  During field days she just walks around.

Friday we went to see the electrophysiologist in Akron, OH.  That is a 3 hour drive from our house! We have decided to go forward with have an ICD (implantable cardioverter-defibrillator).  Within the next 2-3 weeks.  Because she is small, the doctors will go in her stomach and attach it directly to her heart.  After she gets older and bigger it will be placed in her chest.  She will have a scar but it will be small.  She will have to stay overnight possible 2 after the surgery. Recovery is about 2 weeks.  I still have no idea what I will do with George, I am sure it will all work out.


ChloeJace is looking forward to the surgery, the first thing she wants is a bike.  We have talked about the surgery and what it means and what will happen.  As any child would be she is a bit nervous, but still excited to be able to do more normal things.

Brian, is nervous too, he has never had a child go through any type of surgery. Due to the cost he will not be able to take time off during or for the surgery.  That is ok, Chloe and I are pro's at this.  The doctor that did ChloeJace's brain surgery is at the same hospital now, he is on the floor just below the heart doctor..