The truth, whole truth and yadda, yadda, yadday!

Ok so I failed to mention in the last blog. That  ChloeJace's up coming surgery scares me! I am terrified. I am afraid of being alone in the hospital with her.  Afraid of the actual surgery.  ChloeJace has only had 3 surgery's in her life but has been put to sleep over a dozen times.  I know the financial burden will be heavy, but that doesn't scare me, maybe it should?  Recovery at home with her and George scares me.  The 3 hour drive home from the hospital with just her and I scares me.
  George love, love, loves his sister, when she is away for a night, he is uneasy.  For her and I both to be gone, will be very dramatic for him, especially if Brian has to work!  I know he will want to be with her and play and get in her bed. It will be hard to keep him in a safe distance from her.
 So here it is my fears, all of them written out so I have to face them, and not just look over till I am ready to deal with them.  I am not ready to deal with ANOTHER life saving, changing...surgery!  I have strong faith and know that ChloeJace's is in good hands,  God's hands.  But I am just a human, and I love my child very much, and I know if he brings me to it he WILL see me through it!

Heart Surgery for ChloBug

Since we found out of the possible LongQT Syndrome in 2009 Chloe's life has changed.  She is not supposed to swim, participate in sports, run, ride bike, participate in gym.  Most of the things that kids do she is not supposed to do.  In school while the rest of her class goes to gym, she attends another music class.  During field days she just walks around.

Friday we went to see the electrophysiologist in Akron, OH.  That is a 3 hour drive from our house! We have decided to go forward with have an ICD (implantable cardioverter-defibrillator).  Within the next 2-3 weeks.  Because she is small, the doctors will go in her stomach and attach it directly to her heart.  After she gets older and bigger it will be placed in her chest.  She will have a scar but it will be small.  She will have to stay overnight possible 2 after the surgery. Recovery is about 2 weeks.  I still have no idea what I will do with George, I am sure it will all work out.


ChloeJace is looking forward to the surgery, the first thing she wants is a bike.  We have talked about the surgery and what it means and what will happen.  As any child would be she is a bit nervous, but still excited to be able to do more normal things.

Brian, is nervous too, he has never had a child go through any type of surgery. Due to the cost he will not be able to take time off during or for the surgery.  That is ok, Chloe and I are pro's at this.  The doctor that did ChloeJace's brain surgery is at the same hospital now, he is on the floor just below the heart doctor..

Cedar Point trip 11

Since July 4th is my favorite holiday, this year we actually did something.  We packed up the car and kids and headed to Cedar Point. 

The car trip was only about an hour and a half. Not Bad!!

First stop was the carousel! Something the whole family could do.

George found lots of rides he could go on.

Some he needed a big person with him.

Some CJ could do.

Some she needed Mom for.

Brian even got to do some.

Oh! and Boom in the sky at Lake Erie!

Day 2 called for the world's biggest snow cone!

Blue Steel!! hehe

But all good things come to an end!