My Valentine.

When you have as many medical bills as we do, you learn to love when every one is healthy.  ChloeJace will be back at another Children's hospital this week. Wednesday she goes to the pediatric neurosurgeon. She will have her regular MRI. This is done to ensure that the brain tumor is not coming back. We used to have to get this done every six months, then every year. It will be about a 2 hour drive to Akron, OH. We have the MRI at 9:15am. It takes about 30 -45 mins. of preparation, then an hour in the machine. Followed by another 45 mins. of recovery. After that we will see the doctor that will be around 1pm.  You  know how it is you never get in and out on schedule.


Then in 2 more weeks ChloeJace will be at The Cleveland Clinic. This is another children's hospital, this one is in Cleveland, OH, another 2-3 hours away. At The Cleveland Clinic she will see her pediatric electrophysiology. This is her heart doctor. We will get there and she will have an EKG done, then we will see the doctor. This one is a bit more easy, they just ask a lot of questions. Then we get our prescription for 6 more months of beta blockers, and if anything needs to be done, that means that ChloeJace will have to wear a monitor for a period of time then send it back. She has wore an event monitor 2 times and, this monitor is on for about a month.  ChloeJace has also wore a holter monitor, this monitor is wore for 24 hours. I think she has wore this kind of monitor 4 times.


As you can imagine one condition is made a little hard to treat because of the other, then you throw in the allergies and asthma, and we have several long days a year. My favorite part, is that it is our time. The car rides and the waiting to be seen by the doctor gives us lots of time to be mommy and daughter. Everyday life is so busy, it gets harder to stop and just talk about nothing, or everything together. I can think of a million ways to spend a day or two with ChloeJace,  and it doesn't include going to or from a hospital. You see, these are my Valentines days and if you were to ask ChloeJace she would say the same. If your Valentines day is February 14 or, or the Sunday afternoon when everything is calm and quite, enjoy it and embrace the time you have. It doesn't have to include gifts, or going out, it is what you make it.


Brian and I do not go out we do not exchange gifts on Valentines day, we know that our love can be celebrated any day. ChloeJace and I already have to special dates coming up, and for that I am thankful.